About Us
Welcome to the Smarelief Foundation India Network
Initiated by a small group of parents whose children suffer from Spinal Muscular Atrophy—a rare inherited degenerative neuromuscular illness that is disabling and potentially fatal—the Smarelief Foundation of India is a parent-led community. Together, parents of SMA warriors and adult SMA patients worked to increase public knowledge of the illness, provide the framework for improved care, and push for more widespread access to clinical trials and currently available, approved medicines. The community changed, flourished, and was incorporated in five years.
About SMA
Helping is Great Virtue for Every Human’s
A hereditary condition known as spinal muscular atrophy (SMA) affects the motor nerve cells in the spinal cord, impairing a person's ability to walk, eat, or breathe and robbing them of their physical strength. For babies, it is the leading genetic cause of death. A mutation in the survival motor neuron gene 1 (SMN1) causes SMA.
Progressive loss of mobility and muscle weakness are the results of spinal muscular atrophy (SMA). It is brought on by degeneration of the motor neurons, which are nerve cells that link the body's muscles to the brain and spinal cord. The muscles used for crawling, walking, sitting up, moving the head, and even swallowing gradually weaken and shrink (atrophy) when the connection between the nerves and muscles breaks broken.
Treatment for SMA now In India
Given the significant unmet need among SMA patients in India, Smarelief Foundation India collaborated with Roche, the patient community, the HCP community, and the regulatory bodies to expedite the approval procedures. As a result, Evrysdi (Risdiplam) is now the sole approved medication for SMA patients of all kinds in India.
treatments like the FDA-approved gene therapy for spinal muscular atrophy, Zolgensma, which is administered as an intrathecal (IT) injection and is presently not accessible in India, and Roche Pharmaceuticals' Evrysdi (Risdiplam).
Know more about such treatments.
1+
Years of Fundation
100+
Monthly Donate
10+
Partners
WHO WE ARE
Make a Difference
Learn more about our goals, supporters, and SMA patients and their families.
It’s free of charge to provide service and raise funds. Easily get access to campaigns or projects.
By the funds we receive from our supporters, we aim to utilize the funds in the best possible way to treat SMA patients as per their needs.
With your funds, we work with the key people from the industry to perform extensive research for getting breakthrough and evidence-based results, creating a real impact in lives.
A safety network lets your donations and funds guarantee a safe way to the SMA network and individuals
Annual Fundraiser
Join the cause! Help raise for the SMA community.
Every year, we run a number of campaigns, support projects, and awareness raising events to raise money for our patients. We support both developing new medicines as well as facilitating access to a variety of existing ones.
Helping is the great virtue for human
Events & programs
Latest Events & Programs
Vineyard Venues
Tee off with purpose and swing for a brighter future as we gather…
About Us
What We Do For Donate Charity Foundations
We provide unbiased care for all our SMA patients.
We engage in transparent and sincere communication with each and every one of our members. We also give them free access to a range of healthcare facilities, basic meals, and medications. We can try to build a more robust community for our platform by doing this.
Every Voice is important
Work with us in our campaigns to generate awareness.
Testimonials
What Our People’s Say About Sma Relief Foundation
