ABOUT US
Welcome to the Smarelief Foundation India Network
The Smarelief Foundation of India is a public charitable trust that is registered and has representatives all over India. From our modest beginnings as ten families, we have expanded to become a national voice for SMA families and individuals. Through our newly diagnosed care and counselling, resource pool, SMA camps and supportive services, patient advocacy, and numerous other direct family support programmes, we assist SMA families every year. We are putting a lot of effort into empowering SMA patients and giving them access to current resources. We've increased our efforts to introduce the potentially life-saving SMA treatments to India.
The introduction of Risdiplam, an oral medication used to treat SMA, in India has been made possible in large part by Smarelief Foundation India. We are currently working closely with all parties involved to ensure that the medication is available to all SMA sufferers. We pledge our allegiance to our members, the SMA community in India, and the day when we will contribute to the realisation of universal access to SMA medicines.
Helping is the great virtue for human
Meet our Volunteer
Our Mission, Vision and Values
Our goals include bringing SMA therapy and a cure to India, ensuring that everyone has access to affordable, high-quality healthcare, and insurance. We also want to raise awareness about SMA and the value of genetic screening in order to eradicate genetic disorders from the planet.
We envision a world free of SMA and with universal healthcare available to all.
Values
We make it our goal to execute every task with the utmost accountability and responsibility.
We are not only tenacious in our search for a remedy or cure, but also tactical. We are aware that conducting thorough, objective research while balancing optimism and realism will lead to a future free of SMA the quickest.
To us, our community is everything. Without our doctors, families, and researchers' tremendous efforts, we would not have progressed as far in our fight. We are stronger together than we ever will be with SMA.
There is no greater loss that anyone can imagine than losing one's self-respect. At Smarelief Foundation of India, we sincerely believe that every patient and their family has the right to a dignified existence. Each SMA Individual decides to live a dignified life, which the community must respect and embrace. Living with an illness such as SMA has no right way of doing things. Everybody has a unique experience, and each family is free to define what SMA means to them.
No one has to fight this horrible illness alone, thanks to the Smarelief Foundation of India. We communicate honestly and freely with those who are impacted by SMA, providing them with accurate and clear information. We also give unconditional support.
We aim to create a future free of genetic diseases in addition to finding treatments and cures, and we will not back down from a battle no matter how difficult it becomes.
Annual Fundraiser
Join the cause! Help raise for the SMA community.
Every year, we run a number of campaigns, support projects, and awareness raising events to raise money for our patients. We support both developing new medicines as well as facilitating access to a variety of existing ones.
Helping is the great virtue for human
What makes CureSMA different?
Our well regarded humanitarian organisation is committed to eradicating the inequity of access to rare disease medications and treatments across generations. We have created a powerful network, campaigns, advocacy, and awareness raising over the last five years that enable children impacted by SMA. Children in safe, critical care have access to health care, educational materials, and programmes that change lives because to your sponsorship.
Meet our Volunteer
We Have a Volunteer Team
Meet Our Professionals
1+
Years of Fundation
10+
Partners
100+
Monthly Donate
Testtimonials
What Our People’s Say About Sma Relief Foundation
